Human Rights and Sustainable Development Goals in the Global Governance of New Technologies for Human Health
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Abstract
This article focuses on the role of Human Rights (HR) and Sustainable Development Goals (SDGS) in the global governance of new technologies for human health. The first part addresses governance: the process of governing different issues of collective life, including multiple actors and means. The second part discusses the global governance of new technologies: the need, the feasibility and what it should look like. The third part reflects on the global governance of new technologies for human health, analysing the recent who plans for global governance of human genome editing and artificial intelligence for health. It concludes that good procedure is insufficient for good governance; ethical content is crucial. Special attention to the role of hr and sdgs is recommended. Proactive ethics is proposed throughout the whole pro- cess (conceptualisation, design, development, distribution, and use) of new technologies, which requires ethical education for the different stakeholders.
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References
BBC News Mundo. Covid: o país que só vacinou 3% da população, mas vai destruir 1 milhão de doses vencidas. 2021 feb [consultado 10 de diciembre de 2021]. Disponible en: https://www.bbc.com/portuguese/internacional-59595360
Programa de las Naciones Unidas para el Desarrollo. PNUD. Global Dashboard for Vaccine Equity [Internet]. Data Futures Platform. 2022 [consultado 30 de marzo de 2022]. Disponible en: https://data.undp.org/vaccine-equity/
Lumen. Hack your metabolism. [Internet]. 2022 [consultado 21 de febrero de 2022]. Disponible en: https://lumen.me
Lee M, Boudreaux B, Chaturvedi R, Romanosky S, Downing B. The Internet of Bodies: Opportunities, Risks, and Governance. [Internet]. RAND Corporation; 2020 Oct [consultado 28 de febrero de 2022]; p. 37. Disponible en: https://www.rand.org/pubs/research_reports/RR3226.html
ten Have H, editor. Encyclopedia of Global Bioethics [Internet]. Switzerland: Springer International Publishing; 2016; 2 [consultado 13 de abril del 2021]. Disponible en: https://www.springer.com/us/book/9783319094823
Aramesh K. Governance, ten Have H, editor. Encyclopedia of Global Bioethics [Internet]. Switzerland: Springer International Publishing; 2016 [consultado 13 de abril del 2021]. p. 1423-32. Disponible en: https://www.springer.com/us/book/9783319094823
Organización de las Naciones Unidas para la Educación, la Ciencia y la Cultura. UNESCO. Concept of Governance [Internet]. International Bureau of Education. 2015 [consultado 13 de julio del 2021]. Disponible en: http://www.ibe.unesco.org/en/geqaf/technical-notes/concept-governance
Weiss TG. Global Governance: Why? What? Whither? Cambridge, UK: Polity Press; 2013. 225 p.
National Academies of Sciences, Engineering, and Medicine. Human Genome Editing: Science, Ethics, and Governance [Internet]. Washington: The National Academies Press; 2017 feb [consultado 5 de julio de 2021] p. 329. Disponible en: https://www.nap.edu/catalog/24623/human-genome-editing-science-eth-ics-and-governance
Rothblatt M. Virtually Human. New York: Picador Paper; 2015. 368 p.
Jasanoff S.The Ethicsof Invention: Technology and the Human Future.New York: W. W. Norton & Co Inc; 2016. 306 p.
Rhodes C. International Governance of Biotechnology: Needs, Problems and Potential. London: Blossombury Academic; 2010. 225 p.
Organización Mundial de la Salud. OMS. Expert Advisory Committee on Developing Global Standards for Governance and Oversight of Human Genome Editing. Human genome editing: a framework for governance [Internet]. Geneva: WHO; 2021 [consultado 13 de julio de 2021]. 87 p. Disponible en: https://www.who.int/publications/i/item/9789240030060
European Group on Ethics in Science and New Technologies. Values for the Future: The Role of Ethics in European and Global Governance [Internet]. Brussels: Publications Office of the European Union; 2021 [consultado 16 de noviembre de 2021]. 21 p. Disponible en: https://ec.europa.eu/info/files/values-future-role-eth-ics-european-and-global-governance_en
Organización de las Naciones Unidas para la Educación, la Ciencia y la Cultura. UNESCO. Universal Declaration on the Human Genome and Human Rights [Inter- net]. 1997 [consultado 3 de diciembre de 2019]. Disponible en: http://portal.unesco.org/en/ev.phpURL_ID=13177&URL_DO=DO_TOPIC&URL_SECTION=201.html
Organización de las Naciones Unidas para la Educación, la Ciencia y la Cultura. UNESCO. Universal Declaration on Bioethics and Human Rights [Internet]. 2005 [consultado 8 de junio de 2019]. Disponible en: http://portal.unesco.org/en/ev.php-URL_ID=31058&URL_DO=DO_TOPIC&URL_SECTION=201.html
Organización Mundial de la Salud. OMS. Health Ethics & Governance. Ethics and governance of artificial intelligence for health [Internet]. Geneva; 2021 [consultado 9 de septiembre de 2021]. 165 p. Disponible en:
https://www.who.int/publica-tions-detail-redirect/9789240029200
Organización de las Naciones Unidas para la Educación, la Ciencia y la Cultura. UNESCO. Recommendation on the Ethics of Artificial Intelligence [Internet]. 2022 [consultado 9 de abril de 2022]. Disponible en: https://unesdoc.unesco.org/ark:/48223/pf0000381137
Doudna JA, Sternberg SH. A Crack in Creation: Gene Editing and the Unthinkable Power to Control Evolution. Illustrated Edition. Boston: Houghton Mifflin Harcourt; 2017. 304 p.
Solinís G, editor. Global bioethics: what for? Twentieth anniversary of UNESCO|’s Bioethics Programme [Internet]. Paris, France: UNESCO; 2015 [consultado 4 de junio de 2019]. 150 p. Disponible en: https://unesdoc.unesco.org/ark:/48223/pf0000231159UN
Universal Declaration of Human Rights [Internet]. 1948 [consultado 13 de julio de 2019]. Disponible en: https://www.ohchr.org/en/human-rights/universal-declaration/translations/english
Naciones Unidas. un. International Bill of Human Rights [Internet]. [consultado 6 de mayo de 2022]. Disponible en: https://www.ohchr.org/en/what-are-human-rights/international-bill-human-rights
UN. Transforming our world: the 2030 Agenda for Sustainable Development [Internet]. UN Department of Economic and Social Affairs Sustainable Development. 2015 [consultado 11 de mayo de 2022]. Disponible en: https://sdgs.un.org/2030agenda
WHO Expert Advisory Committee on Developing Global Standards for Governance and Oversight of Human Genome Editing. Human genome editing: position paper [Internet]. Geneva: WHO; 2021 [consultado 13 de julio de 2021]. 6 p. Disponible en: https://www.who.int/publications-detail-redirect/9789240030404
who Expert Advisory Committee on Developing Global Standards for Governance and Oversight of Human Genome Editing. Human genome editing: recommendations [Internet]. Geneva: who; 2021 [consultado 13 de julio de 2021]. 49 p. Disponible en: https://www.who.int/publications-detail-redirect/9789240030381